影响学龄前儿童父母生活质量的孤独症谱系因素分析

Eapen V, Islam R, Azim S I, et al. Factors impacting parental quality of life in preschool children on the Autism Spectrum[J]. Journal of Autism and Developmental Disorders, 2022: 1-12.

Abstract

This study examined connections between parental quality of life (QoL) and features of children (autism severity, cognitive ability, behavioral profile, and sociodemographic factors). Parents of 97 children attending an autism-specific preschool completed the Quality of Life in Autism, Vineland Adaptive Behavior Scales and Child Behavior Checklist. The Autism Diagnostic Observation Schedule and Mullen Scales of Early Learning were also administered. Reduced restrictive/repetitive behavior and higher socialization and play/leisure scores were associated with better parental QoL. Better behavioral regulation and attention also predicted better QoL, as did stronger communication and reduced internalising behaviours. Findings indicate that a child’s level of autism specific traits, adaptive functioning and behavioral profile has greater impact on parental QoL than cognitive level.

本研究考察了父母生活质量(Q0L)与儿童特征(自闭症严重程度、认知能力、行为特征和社会人口因素)之间的联系。 97名自闭症儿童的父母完成了自闭症儿童的生活质量、Vimneland适应行为量表和儿童行为检查表。 同时使用自闭症诊断观察表和马伦早期学习量表。 限制性/重复性行为的减少、社会化和游戏/休闲得分的提高与更好的父母生活质量有关。 更好的行为规范和注意力也预示着更好的生活质量，更强的沟通和更少的内化行为也是如此。 结果表明，儿童自闭症特征水平、适应功能水平和行为特征水平对父母生活质量的影响大于认知水平。