Parents’ perceptions: environments and the contextual strategies of parents to support the participation of children and adolescents with autism spectrum disorder—a descriptive population-based study from Switzerland

Krieger B, Moser A, Morgenthaler T, et al. Parents’ perceptions: environments and the contextual strategies of parents to support the participation of children and adolescents with autism spectrum disorder—a descriptive population-based study from Switzerland[J]. Journal of Autism and Developmental Disorders, 2022: 1-23.

Abstract

Environments have a modifying effect on the participation of children and adolescents with autism spectrum disorder (ASD) in all areas of life. This cross-sectional study investigated parental perspectives on supportive or hindering environments and the daily contextual strategies parents used to enhance their children’s participation. Qualitative and quantitative data gathered from 115 parents from German-speaking Switzerland using the participation and environment measure-child and youth (PEM-CY) were analyzed. Results revealed 45 environmental supports and barriers at home, at school, and in the community. Contextual strategies were identified in combination with people, activities, time, objects, and places. Parental perspectives on participation and their contextual strategies should be considered in environmental-based interventions to support the participation of children and adolescents with ASD.

环境对患有孤独症谱系障碍(ASD)的儿童和青少年在生活的各个领域的参与都有调节作用。 本横断面研究调查了父母对支持性或阻碍性环境的看法，以及父母用于提高孩子参与的日常情境策略。 使用参与和环境测量-儿童和青年量表(PEM-CY)对来自瑞士德语区的115名家长收集的定性和定量数据进行了分析。结果显示，在家庭、学校和社区中存在45种环境支持和障碍。 语境策略与人、活动、时间、物体和地点相结合。在以环境为基础的干预措施中，应考虑家长对参与的看法及其情境策略，以支持孤独症儿童和青少年参与。