Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.

It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity.

This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.

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“One of the most remarkable books I’ve ever read. It’s truly moving, eye-opening, incredibly vivid.”—Jon Stewart, The Daily Show

NAMED ONE OF THE BEST BOOKS OF THE YEAR BY
NPR • The Wall Street Journal • Bloomberg Business • Bookish

FINALIST FOR THE BOOKS FOR A BETTER LIFE FIRST BOOK AWARD • NEW YORK TIMES BESTSELLER

You’ve never read a book like The Reason I Jump. Written by Naoki Higashida, a very smart, very self-aware, and very charming thirteen-year-old boy with autism, it is a one-of-a-kind memoir that demonstrates how an autistic mind thinks, feels, perceives, and responds in ways few of us can imagine. Parents and family members who never thought they could get inside the head of their autistic loved one at last have a way to break through to the curious, subtle, and complex life within.

Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.

In his introduction, bestselling novelist David Mitchell writes that Naoki’s words allowed him to feel, for the first time, as if his own autistic child was explaining what was happening in his mind. “It is no exaggeration to say that The Reason I Jump allowed me to round a corner in our relationship.” This translation was a labor of love by David and his wife, KA Yoshida, so they’d be able to share that feeling with friends, the wider autism community, and beyond. Naoki’s book, in its beauty, truthfulness, and simplicity, is a gift to be shared.

Praise for The Reason I Jump

“This is an intimate book, one that brings readers right into an autistic mind.”Chicago Tribune (Editor’s Choice)

“Amazing times a million.”—Whoopi Goldberg, People

The Reason I Jump is a Rosetta stone. . . . This book takes about ninety minutes to read, and it will stretch your vision of what it is to be human.”—Andrew Solomon, The Times (U.K.)

“Extraordinary, moving, and jeweled with epiphanies.”—The Boston Globe

“Small but profound . . . [Higashida’s] startling, moving insights offer a rare look inside the autistic mind.”Parade

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Friendship 101 focuses on building social competence, friendship making, and recreation and leisure skills among students with autism spectrum disorder and other developmental disabilities. Chapters in this evidence-based, user-friendly guide address the needs of students in different developmental periods (from pre-K through young adulthood), providing teachers, parents, faculty and teacher educators with tools and strategies for enhancing the social skill development of these children and youth. Presented through an ecological perspective, together these chapters emphasize building social competence within and across school, home, and community contexts.

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这本书是任何与患有自闭症谱系障碍的青少年一起工作的临床医生或研究人员的必备读物。这种由父母协助的青少年干预是基于加州大学洛杉矶分校塞梅尔神经科学和人类行为研究所为期 14 周的全面、循证计划、流行的加州大学洛杉矶分校 PEERS 计划的手册化以及儿童友谊培训(Routledge,2002 年)儿童手册的成功。

在回顾了旨在帮助父母和治疗师根据与他们一起工作的青少年的需求定制手册的技术之后,本文继续讨论个人治疗课程和解决问题的策略,例如发展对话技巧、选择朋友、使用幽默、聚会、取笑、欺凌、八卦和处理分歧。每节课的章节都包括讲义、家庭作业、对期望的描述(以及如何应对提供干预的挑战),以及为父母和治疗师定制的技巧。

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几乎一半的自闭症患者会出现自残行为,这是最具破坏性和最具挑战性的治疗行为之一。有许多不同形式的自残,例如撞头、咬手、拉头发、过度抓挠等等。在研究和治疗领域领先专家的贡献下,该书对自闭症谱系障碍 (ASD) 或相关发育障碍患者的自残行为 (SIB) 以及可用于治疗他们的不同方法进行了全面分析。

医学和行为研究人员已经研究了 SIB 超过 50 年,但许多从业者和父母仍然不熟悉广泛的促成原因和治疗方案。从对 SIB 及其各种形式的解释开始,撰稿人概述了自伤的许多可能的潜在原因,例如癫痫发作、青少年荷尔蒙失调、胃肠道疾病、过敏和压力,并展示了在发现自伤原因时如何采用多学科方法可以导致成功的治疗策略。他们解释了 SIB 可用的治疗方案,包括营养、医学、精神病学、感官和行为方法,并展示了治疗自伤的综合方法如何对许多人有效。

这本书将成为任何与自闭症谱系障碍或相关疾病患者以及父母和直接护理提供者一起工作的从业者书架上的宝贵补充。

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关键反应教学法(Classroom Pivotal Response Teaching,CPRT)以得到实证研究支持的、基于应用行为分析原则的关键反应训练(Pivotal Response Training,PRT)为基础,重点关注该方法在课堂中的应用,旨在增强孤独症儿童的动机和参与学习的积极性,提高有针对性的沟通、游戏、社交和学业能力。本书还提供了大量实用表格,可重复使用,旨在帮助教师更好地制订计划和实施流程。

奥温· C. 斯塔曼博士(Aubyn C. Stahmer, PhD), 儿童及青少年服务研究中心(Child and Adolescent Services Research Center, CASRC)研究员, 加州大学圣地亚哥分校(University of California, San Diego,UCSD)心理学院项目副研究员,拉迪儿童医院孤独症研究中心(Rady Children’s Hospital Autism Discovery Institute)负责人。她拥有逾20 年孤独症儿童相关工作及使用关键反应训练(Pivotal Response Training,PRT)的经验。

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《语言行为里程碑及安置程序》为教育人员和家长对孤独症和其他发展性障碍孩子的学习、语言和社会技能进行评估提供了一个有效的工具。语言行为里程碑及安置程序(VB-MAPP)来源于斯金纳关于语言的分析、行为分析的基本原理和儿童发展的里程碑,是一套比较完整和优良平衡的评估方法,可以帮助确认那些妨碍孩子学习和语言进步的障碍,有助于为孩子发展出一套个别化干预的程序而提供方向。

作者: [美]马克·桑德博格(Mark L.Sundberg)
出版社: 北京大学医学出版社
副标题: 孤独症儿童康复教育试点项目培训教材
原作名: Verbai Behavior Milestones Assessment and Placement Program
译者: 黄伟合 / 李丹
出版年: 2017-6-1

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是一本介绍了团体化早期启动丹佛模式(Group-Based Early Start Denver Model,GESDM)在孤独症学前儿童中的实施方法的书籍。

作者:[美]萨莉·J.罗杰斯(Sally J.Rogers)、[美]杰拉尔丁·道森(Geraldine Dawson)、[美]劳里·A.维斯马拉(Laurie A. Vismara)

译者:张庆长、何逸君、秦博雅、王蔡琳 等

审校:复旦大学附属儿科医院

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《The Spark: A Mother’s Story of Nurturing, Genius, and Autism》是由Kristine Barnett撰写的一本书,讲述了她的儿子Jacob的故事,Jacob被诊断为自闭症谱系障碍。

这本书主要围绕Kristine Barnett的儿子Jacob展开,Jacob在早期被诊断为自闭症,医生们普遍认为他可能永远无法进行正常的沟通和学习。然而,Kristine Barnett没有接受这个判断,她决心采用自己的方式来教育和培养Jacob,她相信他有潜力成为一个杰出的个体。

在书中,Kristine描述了她是如何通过关注Jacob独特的兴趣和能力,为他创造了一个支持性的环境,让他能够充分发展自己的才能。她介绍了一系列她所采用的方法,包括使用非正式的学习方式,提供大量的自主学习机会,并将Jacob引入更高级的数学和物理学课程。

随着时间的推移,Jacob展现出了惊人的才能和智慧,他在数学和物理学方面表现出非凡的天赋,甚至在年轻的时候就开始参与大学级别的课程。他的故事展示了一个家庭如何通过关爱、理解和支持,帮助一个自闭症儿童发掘自己的潜力,并实现了不可思议的成就。

这本书不仅是一个母亲对自己孩子的真挚叙述,也是对自闭症谱系障碍的认识和教育方法的一种启示。它强调了每个孩子都是独特的,并且每个孩子都有发挥自己潜能的可能性,只要给予足够的支持和理解。

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《学前特殊需要儿童融合教育实用手册(第二版)》是美国学前融合教育和早期干预领域重要的著作之一。它通过理论陈述、生动案例、实用表格的形式讲解融合幼儿园中如何建立教学辅助模式,为特殊需要儿童提供适宜的班级支持,包括:评估幼儿园融合环境,如何针对特殊儿童的需要进行课程调整,如何将特殊儿童的发展目标融合到班级活动中而进行的嵌入式教学,如何管理特殊需要儿童的挑战性行为等。
内容具体详实,理论深入浅出,方法易于操作,将会是我国幼儿园师资培养的不可多得的教科书,为幼儿园管理者和一线教师提供可借鉴、可操作的融合教育策略。书中提及的多种方法,对特殊儿童家长同样具有重要的借鉴意义。

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